Wednesday, 18 September 2013

A New Pace

Well its been a while since I wrote an update ... suppose I've been lazy.  Or maybe since I've been out for just over a week now I've been busy with freedom ... who knows ;)  One thing I'll say has been a bit of a challenge over the last nine months since diagnosis and even a little more pronounced now, is adjusting to a new pace to live by.  Not the end of the world and I know I've never been a ball of fire but takes some getting used to for a 31 year old.  Suppose part of it is getting older, part the steroids I'm on, part new cells, partly getting over radiation, chemo and not eating for a week side effects.  Yeah I guess theres been quite a bit to adapt to over the last almost month but it still takes some getting used to.  I get around but walk slower (I know is that possible).  Riding the bike but not as fast and gased after 5k.  Need a little sit down after a shower and getting dressed.  I guess you keep after it and it will get better but who has time to wait around for that haha.  If that's my biggest complaint is learning to slow it down and learn to let it come to me a little more than I'm used to I'll take it ;)  Reminds me of a saying my Grandpa had on his wall 'Lord grant me patience ... but hurry!'


-On prednisone for a minor gvh rash still which would be nice if that would go away.  Doesn't really bother me and not all that noticeable.
-Lots of pills to remember to take at different times daily too which can be a pain.  All to support health while the new immune system is being brought online.
-Laying low trying to be patient and do the right things over the next few months.
-Guess its 26% of the way to day 100 which I'm told is a milestone and so far so good in my books :)
-Lucky to have strength, motivation and support from so many family and friends to keep pushing me through this.
Thats all for now .... actually no I was really craving a beer today but have been good and havent had one in almost month .... which has to be a 16 year record .... someone crack a cold one for me!
Cheers!

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