I've never really been on board with counting days. Goals are important so I see how people can use counting days to help achieve goals I've just never took that approach. Setting a date or time to complete a task I can see. Quitting something like smoking or drinking and counting days seems odd to me. If you quit you quit and that's awesome if that's what you want or need but why count days or months. To me it seems like your counting the till the next time. I suppose the longevity makes it seem more impressive but its that you did it is impressive to me. Anyway, I get asked by people and I guess its how they approach it doctors/nurses what day are you? I kept track at first too ... Probably because there was an updated calendar in the hospital room. Now every time someone asks me I either have to count or guess. I know two dates I'm keeping in mind and that's when they check my bone marrow for the first time post transplant around day 60 Oct. 22. Then day 100 which I've heard is a good indicator that you've passed through a critical period and if you do that with little to no complications prognosis is improved ... Dec. 1 but I've also heard day 120 so Dec 21 is in my back pocket. So other than those dates its another day post SCT. Not sure why I took the time to write that ... Must be bored waiting for the Dolphins game to start.
I was reminded yesterday it wasn't long ago I was locked up in the hospital for a while. You appreciate small things in life after you can't take advantage of them for a while then get them back. I really enjoyed the comfort of my bed last night. That and being able to open the window and hear some rain fall and crickets chirp. Much better than the noise of the HVAC system in the hospital ... Although I did have music to try and drown it out, no where close to the same as the comfort of home. The bike rides along the waterfront are more enjoyable than the bargain basement exercise bike I had in the room too ... Although the view was nice it didn't change and I didn't have a fan to get the wind blowing over my bald head. But yeah I'm glad to be home and appreciating simple things life has to offer. oh the food and access to the fridge and tv are markedly improved too sending moral through the roof.
Still dealing with this rash but its minor and doesn't bother me too much. Hopefully it will clear up soon and taper down the steroids. Other than that all seems good. Enjoy the nice Fall colours and weather. Cheers.
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